Today is World Mental Health day. I’m not ok, but more importantly are you ok? Please check in on yourself, friends and family. Now is as good a time as ever to say hi and ask “How’re you doing?” (Joey accent optional).
It’s around 6 months since the pulmonary embolism and while recovery is going ok there’s still some things not right.
I’ve come to think of them as things I’ve lost in the fire. They’re not coming back or at least not without hard work.
I finally have some closure on the PE that turned my life upside down at the end of October last year.
I have it written on a piece of NHS branded paper. It’s innocuously included in a list of other ailments from a consultant only vaguely related the rest of the bullshit I’m having to deal with (health wise not NHS they’ve been ok/great).
It’s been about 2 weeks since I was in hospital and things are starting to sink in. Firstly just how serious things got and secondly the trajectory my life is/was taking.
The aim of this post is to try and explain what it’s like living with ME/CFS. I can’t quite remember where the idea of spoons as a unit of energy came from, I think it might have been from my friend Gem, so I’m blaming/crediting them.